After the diagnosis: What I wish I had known then that I know now
Here are the words of our families--the ones living with terminal illness every day: You have to be proactive. I think the one thing we…
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October 5, 2021
PERSPECTIVES FROM FAMILIES WHO GET IT, PLUS TIPS FROM PROFESSIONALS
Parenting with a Terminal Illness
Some might argue that “intentional” is by now just a hackneyed buzzword. Still, we use it often at IoH because we think it is one…
October 5, 2021
Real talk about Scanxiety
You can’t avoid it. So, let’s be honest about scanxiety. Here are some ways that four different families living with terminal illness cope just before…
October 5, 2021
Insurance, Disability and Financial Issues with terminal illness
This is not intended to be advice, but rather a compilation of tips from some of our families. The most important thing we learned is…
October 4, 2021
Resources outside of IoH
Here are some resources we have found that are often helpful to IoH families. Please note that this list was compiled in the summer of…
October 3, 2021
Caregiver to Caregiver advice
All your other responsibilities are still here--work, bills, childcare, household chores, family obligations. None of it went away with the unwelcome arrival of illness into…
October 2, 2021
Conversation Starters for your Kids
The old standard “How was your day?” brings eye rolls, maybe an unintelligible grunt, or a monotone one syllable response. What can parents ask to…
October 1, 2021
Grief in Children
Grief takes many forms--in all of us. For children, especially, this can be confusing both to them and to their parents/caregivers. Our goal here is…
September 29, 2021
Finding our way while helping others: longtime brain cancer survivors and caregivers share their experiences
One thing our IoH families all have in common is the desire to help others on this same road, and to make the path easier…
May 1, 2021
Kristen’s Inspiring Words
March 18, 2021 marks the 48th birthday of Inheritance of Hope Co-Founder Kristen Grady Milligan. Now, eight years after she passed away, many in our…
March 16, 2021