Resources outside of IoH

Here are some resources we have found that are often helpful to IoH families. Please note that this list was compiled in the summer of 2021, and if you have others to add, we would love to hear from you! Send us your best resources at:  info@inheritanceofhope.org

 

General cancer:

https://www.patientresource.com/home.aspx

https://www.cancer.net/

https://www.cancer.gov/about-cancer

https://www.curetoday.com/

Legacy building:

https://leadershipfreak.blog/2014/03/04/10-ways-to-build-powerful-legacy-now/

Resources and help:

https://www.cancer.net/navigating-cancer-care/financial-considerations/financial-resources

Financial advice:

https://www.cancer.gov/about-cancer/managing-care/track-care-costs

https://www.patientresource.com/Financial_Resources.aspx

General, comprehensive websites good for terminal illness: 

End Well: https://endwellproject.org/about/   

End With Care: https://www.endwithcare.org/

Canadian virtual hospice: http://www.virtualhospice.ca/en_US/Main+Site+Navigation/Home.aspx

Caregivers:

https://caregiveraction.org/

Camp Kesem: https://www.campkesem.org/

Camp Erin: https://elunanetwork.org/camps-programs/camp-erin/

A good blog featuring stories from people diagnosed with various cancers: https://www.curetoday.com/community

Clinical trials: https://clinicaltrials.gov/

Talking to children about a parent’s terminal illness: 

https://www.nytimes.com/2019/03/18/well/family/talking-to-children-about-terminal-illness.html

https://www.cancer.org/treatment/children-and-cancer/when-a-family-member-has-cancer/dealing-with-parents-terminal-illness/how-to-explain-to-child.html

https://medlineplus.gov/ency/patientinstructions/000848.html

Funerals:

For planning: everplans.com

Good for how to involve kids:

https://www.kchospice.org/preparing-kids-funeral/

Basic good tips for kids and funerals:

https://www.funeralbasics.org/walking-child-through-funeral-9-tips-parents/

https://www.griefhealing.com/column-explaining-the-funeral-to-your-children.htm

https://www.scarymommy.com/help-child-understand-death-funeral/

Support for widowed spouses:

Modern Widows’ Club:  https://modernwidowsclub.org

Modern Widowers’ Club: https://modernwidowsclub.org/communities/widowers-community/

Offers various types of online support and a community who understands. 

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