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ALS (Lou Gehrig’s disease) Hope@Home™ Group: You don’t have to be alone on this journey

 

When a parent is diagnosed with ALS, life can feel overwhelming, especially with young children. But you don’t have to face it alone. Hope@Home™ connects you with others who get the heartache, the struggles, and the deep challenges of this journey. If you are a parent diagnosed with ALS or a caregiver, our online support groups offer a compassionate space with ALS resources where you’re truly heard.

 

Meetings take place weekly, and unlike anything you’ve experienced before, you can join from anywhere—your home, your car, or even a hospital bed. Led by trained volunteers, our groups provide a safe, supportive environment to share your feelings, find strength, and navigate difficult conversations.

 

As an ALS charity (along with other terminal illnesses), you don’t have to be alone on this journey. Join Hope@Home™ today and discover the comfort and strength of a community that truly “gets it.” 

Online

Hope@Home™ Groups: meet online, weekly with others who “get it”

 

Hope@Home™ App: access to resources on your phone

 

On-site

Hope Hub™: local monthly gatherings right where you live

 

Legacy Retreats®: multi-day getaway with other families facing terminal illness