Blog

Family Spotlight: Adam and Whitney Hayden on the legacy right here

For Adam Hayden, “Storytelling is a pathway toward a meaningful life.”  This nugget of wisdom, shared in his speech at the 2019 End Well Symposium, drives the narrative of Adam’s every day.  Most people only think of death in the broadest of terms, but Adam, who holds a Master of Arts in philosophy, knows it is much more than an existential question.  As a four-year glioblastoma multiforme brain tumor patient, one thing Adam claims to be most proud of is what he calls his relationship with the end of life.  

 

.Adam shares his story at the End Well Symposuim in December 2019   (Photo - Katie Ravas for Drew Altizer Photography) Adam shares his story at the End Well Symposuim in December 2019 
(Photo - Katie Ravas for Drew Altizer Photography) 

608 Hits
Continue reading

Family Spotlight: The Crawford and Loner Families maintain hope in the face of ALS

This blog post was originally published in 2016, and these families have both had many changes since then--happy changes!  The Loners now have two healthy grandchildren they enjoy spending time with, and are proud to report that their three grown children are thriving as well.  Niece Abigale has volunteered on three Inheritance of Hope Legacy RetreatsⓇ, and collaborated with Craig in making this video: https://youtu.be/hnDAtDqcHKE last May for ALS awareness month in 2019.

 

Heather Crawford Dodd, now on staff at IoH, began volunteering on retreats in October 2016, not too long after this article was written.  In May 2017, she met Tom Dodd, also a former family member served-turned volunteer.  They married the following December and live in South Carolina with their four boys.  

 

When we first ran this story, little did we know it was just the beginning.  Heather, Dana, and Craig are in touch weekly--by text and often in person.  Before the coronavirus pandemic, Dana and Craig would drive over an hour to Heather's home every few months and help prepare materials for upcoming IoH retreats.  Even now, they frequently check on each other, and provide love and support both ways--as Heather looks to Dana for advice on how to be a good stepmom, "She is an incredibly patient, strong, and selfless woman and a huge inspiration and encouragement to me," remarked Heather. Dana calls Heather an angel sent just when she needed her most, and describes Heather in just the same way as Heather describes Dana, “she continues to be a source of inspiration and encouragement to me.”

 

We are honored to call these folks family and celebrate the hope they maintain and give to others. 

 

 

“Two are better than one, because they have a good return for their labor. If they stumble, the first will lift up his friend—but woe to anyone who is alone when he falls and there is no one to help him get up.”  Ecclesiastes 4:9-10

 

One of the goals of Inheritance of Hope (IoH) is to connect families. Families who are grieving a life-changing diagnosis, struggling with fears, and facing new realities draw strength from each other as they share experiences and burdens.  Through IoH, new friendships are often formed that offer a depth of understanding many families can’t find elsewhere.

 

The support that is shared is sometimes intangible and immeasurable, yet always tremendous. Sometimes, the support may be tangible yet also tremendously immeasurable, as was the case when Heather Crawford donated a wheelchair van to fellow IoH family Craig and Dana Loner.

8870 Hits
Continue reading

Inheritance of Hope Zooms into 38 families’ homes!

Hope--it’s in our title and it’s what we deliver.  It is not found in the Magic Kingdom or at the Top of the Rock, but it is what we most want our families to find on their Legacy Retreat®.  

 

These 38 families were part of something big, and new for IoH!
These 38 families were part of something big, and new for IoH!
584 Hits
Continue reading

The O’Gorman Family: What it means to keep hope in the face of cancer

Jennifer O’Gorman’s number one piece of advice for families facing what she has faced is this: “Everyone has lots of advice for you, but you have to do what you know is best and trust your gut.  You have to do what feels right for you.”

 

In May 2013, Jennifer’s husband Pat was diagnosed with a glioblastoma multiforme tumor in the front of his brain.  A mere eight days after surgery, he was determined to use his experience for good. Jennifer explains, “He felt like his mission was to touch one person every day and tell his story to give them hope.”  She pauses, and with a quiet laugh remembers, “He was never shy and would talk with anyone any chance he had.”

3087 Hits
Continue reading

From Black and White to Color. Cheryl and Matt Broyles describe their faith in the midst of brain cancer

Originally published in May 2019, Cheryl continues to climb her mountains, particularly inspiring others living with brain cancer.

 

If Cheryl Broyles is a little more teary-eyed than most moms at Oregon State University's graduation this spring, she has good reason.  When her son Grant receives his degree, she just might be thinking about how she never even expected to see him start kindergarten.

 

In July 2000, Cheryl was diagnosed with a Glioblastoma Multiforme brain tumor and told she had a year to live, more or less.  At the time, her children Grant and Clint were three and one. Miraculously, Cheryl has seen them graduate from high school and set out on their own career paths, which, not-so-coincidentally, reflect the values she and her husband Matt have pursued.  The family of wildlife biologists had plenty of experience putting their passion into practice during summer vacations when they celebrated each anniversary of Cheryl’s survival with a huge outdoor adventure.

 

Matt, Clint, Cheryl, and Grant on their 2010 Inheritance of Hope Legacy RetreatⓇ
Matt, Clint, Cheryl, and Grant on their 2010 Inheritance of Hope Legacy RetreatⓇ

 

3177 Hits
Continue reading

IoH Family Spotlight Lex and Brooke Berthelsen: Telling their story

Lex Berthelsen was shocked in December 2017 upon being diagnosed with grade 3a stage IV follicular lymphoma.  The father of three, along with his wife Brooke, immediately sought out cancer survivors and cancer thrivers, relationships that led them to Inheritance of Hope. 

 

“We weren’t sure,” Brooke remembered, “but we printed out the application for an IoH Legacy Retreat® anyway, and did it.  I’m so grateful we did.”

829 Hits
Continue reading

First-ever Inheritance of Hope Family Reunion

What do families do? They laugh together. They cry together. They celebrate together. They make memories together. And, they have family reunions!



We look forward to opening registration once our vendors resume normal operations. In the meantime, mark your calendars: Sept. 5-7, 2020 (note slight date change from our previous announcement) at Renaissance Orlando at SeaWorld.

 

We invite you to make more family memories, re-connect with other families/volunteers, and form new relationships with our larger IoH family.

 

999 Hits
Continue reading

Inheritance of Hope serves seven families at C.A.R.E. Retreat

“It was like a giant hug, just wrapped up in a fancy bow,” described Laura Scampoli of the recent Inheritance of Hope C.A.R.E. Retreat that she attended with her children.  Originally, Laura, her husband Rich, and their four daughters were scheduled to attend an Inheritance of Hope Legacy Retreat® in April 2019. Rich passed away from pancreatic cancer a little over a month before the planned trip to Orlando.

 


Laura Scampoli and her children enjoyed time together in Orlando on the IoH C.A.R.E. retreat

637 Hits
Continue reading

Meet the newest Inheritance of Hope volunteers: 16 join our ranks at the Orlando Legacy RetreatⓇ sponsored by Kendra Scott!

Out of our record-breaking 16 new volunteers, five are former family members served--and you know what that meant--lots of hugs and smiles as we welcomed them back!  Get to know a few of them here!

 

Our newest Inheritance of Hope volunteers along with our “first-timers” from Kendra Scott and Dillard’s
Our newest Inheritance of Hope volunteers along with our “first-timers” from Kendra Scott and Dillard’s

 

735 Hits
Continue reading

Introducing our newest volunteers

Being a big ‘ole family, we just love to welcome new folks in and celebrate all the ways people find Inheritance of Hope!  Here are the stories of how a few recent volunteers became involved. 

 

Nine new Volunteers
Nine new volunteers reported for duty in Orlando on our August retreat! (L to R: Jaci Ranieri, Taylor Andersen, Leah Stapleton, Kent Hagen, Jenn Valenti, Cael Thompson, Ana Liz Greene, Ashton Guerra, not pictured: Lynsey Brock)
1347 Hits
Continue reading