In these days of uncertainty and limited social interaction, you might find yourself frustrated by the way your life has changed over the past few weeks (or even days).  Those of us with ALS or other debilitating diseases get it. But if we can adapt, you can too! 

The Douglas family made lifelong memories on their Inheritance of Hope Legacy Retreat® in May 2017

While the rest of the world learns to social distance, it’s business as usual for many of our Inheritance of Hope families.  There’s nothing quite like a terminal diagnosis or deadly virus to quickly scrap plans and teach necessary health saving measures.  For our IoH families, uncertainty is the only certainty, and they understand the disappointment, anxiety, and adaptations that have become routine over these last few weeks.  Because we are all in this together, these unwilling experts offer their tips for coping with fear, near-constant change, and the need to quarantine. 

On March 18th, Inheritance of Hope (IoH) recognizes the birthday of our Co-Founder Kristen Grady Milligan.  Kristen may have been the best legacy-builder ever--while living with cancer, she prepared cedar chests full of notes, gifts, and videos for each of her three children.  Although young when their mom passed away, Kristen’s son and two daughters continue to feel her presence through the tangible ways she left a part of herself with them.  

Kristen Grady Milligan, March 18, 1973 - October 26, 2012

11 new volunteers joined the IoH family to take a bite out of the Big Apple during our recent Inheritance of Hope Legacy RetreatⓇ in NYC.  Meet a few of them here!

Front row (l to r): Libby Storm, Anneli Shaw, Baylie McClafferty, Katie Atwater Middle row (l to r): Jensi Shaw, Jennifer Weitz, Claire Weitz, Jane Augur Back row (l to r): Nick Ranieri, Charlie Garrison, Roger Lykins

Ashlea Milligan’s parents Kristen and Deric founded Inheritance of Hope together after Kristen was diagnosed with terminal liver cancer.  Ashlea has perspective that resonates with the broader IoH family, and through her writing, hopes to shed light on issues surrounding terminal illness and those who are left behind in its wake.  She wrote her first installment in this series earlier, and continues to share her thoughts.  

Coming to college and discussing childhood with my friends has been a fascinating exploration. My roommates and I come from different backgrounds. While we all grew up under similar circumstances, all American, UNC Chapel Hill-bound children, there are variances that I find striking. Listening to them recount their childhoods is always slightly surprising, and brings out the nuances of my childhood that were contrary to those of my friends. I have begun to recognize how different growing up with a sick parent actually makes your life - the before, after, and during. 

Ashlea and her mom, Kristen

Mikki Jeschke describes her ten years with breast cancer as an “up and down journey.”  Some of her journey has been by boat. Dragon Boat, that is.

In 2009, Mikki underwent a mastectomy and fought through subsequent radiation and chemotherapy. Three years later, she was diagnosed with metastatic breast cancer in her bones.  Soon after, the former student adviser now turned amateur paddler found Inheritance of Hope through a friend. The Jeschke family--Mikki, husband Doug, and sons Benjamin (then eight) and Daniel (then five) attended the May 2012 Inheritance of Hope Legacy RetreatⓇ to Orlando.  

You’ve heard us say it before: IoH is a family.  And what do families have? Reunions! 

Four IoH families: the Boisses, Earles, Carters, and Suttons reunite in Washington

I didn’t know Holley Kitchen but I visualize her face when I hear her name. She has cute blonde hair and expressive eyes. When I first searched online for metastatic breast cancer in 2016, her powerful video was one of the first advocacy pieces that I saw. I cried at the computer when I watched and then I called my husband to sit beside me so we could watch it together. I handed him a Kleenex. Like Holley, I was a young mother that will be fighting cancer until my journey on earth is over.  

Holley Kitchen used her voice for good

At Inheritance of Hope (IoH), we talk a lot about legacy.  We know firsthand that when faced with a life-threatening illness, nothing can be controlled, except for how we want to be remembered.  On the fourth annual Kendra Scott “Holley Day,” Holley Kitchen’s sisters share that today, she is still remembered as a spunky and fun-loving “momma bear” who loved her children with deep intent and purpose.