Blog

Living Through a Legacy

We are honored to feature Kaila Hayden as a guest blogger this month in recognition of ALS awareness month.  Kaila and her family were served on the August 2014 Inheritance of Hope Legacy Retreat in Orlando.  Kaila has since volunteered on four retreats, and brings a special compassion to the families she serves.

 

When you lose a loved one, you find yourself clinging to that which reminds you most of them. Their belongings, their hobbies, their interests, whatever was left to you as a memory of their life. After my mom passed, I found myself surrounded by her in photos, in memories, in the gifts and cards for milestones she would miss. When faced with death, she sought intention to leave behind. 



The Hayden Family making a friend on their IoH Legacy Retreat®
The Hayden Family making a friend on their IoH Legacy Retreat®
952 Hits
Continue reading

IoH Family Spotlight Lex and Brooke Berthelsen: Telling their story

Lex Berthelsen was shocked in December 2017 upon being diagnosed with grade 3a stage IV follicular lymphoma.  The father of three, along with his wife Brooke, immediately sought out cancer survivors and cancer thrivers, relationships that led them to Inheritance of Hope. 

 

“We weren’t sure,” Brooke remembered, “but we printed out the application for an IoH Legacy Retreat® anyway, and did it.  I’m so grateful we did.”

1331 Hits
Continue reading

What Can be Done with ALS

In these days of uncertainty and limited social interaction, you might find yourself frustrated by the way your life has changed over the past few weeks (or even days).  Those of us with ALS or other debilitating diseases get it. But if we can adapt, you can too! 

 

The Douglas family making lifelong memories on their Inheritance of Hope Legacy Retreat®
The Douglas family made lifelong memories on their Inheritance of Hope Legacy Retreat® in May 2017
1173 Hits
Continue reading

IoH Welcomes 11 new volunteers in New York City!

11 new volunteers joined the IoH family to take a bite out of the Big Apple during our recent Inheritance of Hope Legacy RetreatⓇ in NYC.  Meet a few of them here!

 

Front row (l to r): Libby Storm, Anneli Shaw, Baylie McClafferty, Katie Atwater Middle row (l to r): Jensi Shaw, Jennifer Weitz, Claire Weitz, Jane Augur Back row (l to r): Nick Ranieri, Charlie Garrison, Roger Lykins
Front row (l to r): Libby Storm, Anneli Shaw, Baylie McClafferty, Katie Atwater
Middle row (l to r): Jensi Shaw, Jennifer Weitz, Claire Weitz, Jane Augur
Back row (l to r): Nick Ranieri, Charlie Garrison, Roger Lykins
1401 Hits
Continue reading

Sixteen-year-old Ethan Harned continues to inspire hope

As a fourteen-year-old high school freshman, Ethan Harned emptied his savings, not to buy video games or the latest Nike Air Force Ones, but to support a charity he had only just learned about.  It has been two years now since Ethan met Carrey Dewey, a young mother living with ALS whose family was greatly impacted by Inheritance of Hope.  And since then, Ethan has been on a mission to make a difference.  

 

High-schooler Ethan Harned makes a difference beyond his home in Louisville, Kentucky
High-schooler Ethan Harned makes a difference beyond his home in Louisville, Kentucky
2342 Hits
Continue reading

Faces of Holley Day: Jake Anderson honors his wife’s memory by paying it forward

Jake Anderson can’t describe his wife Becky without mentioning her smile, “You don't have to say anything else--you could just see her smile.”  That smile was a window into how Becky lived with her metastatic breast cancer diagnosis amidst raising three young children.  

 

According to Jake, Becky was always hopeful, and while he can't pinpoint exactly how she maintained her hope and faith, he does have a name for it, “I think if you knew her, well, there was a grace about her.  She would put everyone else at ease,” he says. “It felt like everything was ok because she was ok. She made it easy for everybody and always looked on the bright side--right from the beginning. I think the word for her is grace,” he pauses, “and then, there was the smile.” 

 

Becky’s bright smile showed her love for life
Becky’s bright smile showed her love for life
8057 Hits
Continue reading

Faces of Holley Day: Kendra Scott connection inspires service to Inheritance of Hope families

Two weeks before Kendra Scott’s company-wide event, Ally Dee knew Holley Day was “something big.”  As a Kendra Scott sales associate, Ally especially enjoyed meeting guests and welcoming nonprofits that benefit from the jewelry designer’s generous philanthropy.  Holley Day would prove to be even more than she expected.

 

Ally remembers, “The energy that day was different. Kendra Scott stores have a lot of events, but we all knew this was special.  I always liked talking to the people who came in from different organizations and learning about what they do, so I started talking to the Inheritance of Hope rep, not really thinking it was going to be this big. I’m glad I did!” 

1702 Hits
Continue reading

Things for Bryson & Colby to know about their mom

Holley Kitchen battled metastatic breast cancer before losing her fight in 2016. She put her family first. She adored her two sons, Bryson and Colby, and made the most of her time with them. She learned to live intentionally and inspired those around her to do the same. Holley’s sister and friends share some things for the boys to know about who their mom was.

8826 Hits
Continue reading

Caitlin Shorey Raises Her Voice for Inheritance of Hope

Only eight years old, Caitlin Shorey has a big voice, and people are listening.  While she often uses it to belt out Broadway show tunes, lately this powerhouse of a third-grader has been speaking up for one of her favorite charities, Inheritance of Hope (IoH).  IoH serves young families facing the loss of a parent due to terminal illness, and Caitlin’s family benefitted from an IoH Orlando Legacy Retreat® in March 2018.  

 

“It was amazing to be able to express my feelings in a way that I didn’t have to hide anything, and I met new friends from all over,” Caitlin enthusiastically explains.  “For example, sometimes I feel scared, sad, or anxious about what might happen to my mom, but everyone in that group understood what I feel. On an IoH retreat, everyone knows because they have all experienced it.” 

 

The Shorey Family on their IoH Legacy RetreatⓇ
The Shorey Family on their IoH Legacy RetreatⓇ

 

3701 Hits
Continue reading

Meet our newest volunteers

Our family is growing.  Inheritance of Hope now has a roster of 300+ amazing volunteers!  On our Orlando Legacy Retreat in April, we were thrilled to welcome the following into our ranks:

 

Ethan Baur, Clara Beovich, Caroline Braun, Mara Caples, Ally Dee, Anna Latimer, Emileah Most, Micah Most, Sara Theisen, Ethan Trejo, and Cheryl Yeaton.

 

Get to know them a little better here!

2261 Hits
Continue reading