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IoH Family Spotlight Lex and Brooke Berthelsen: Telling their story

Lex Berthelsen was shocked in December 2017 upon being diagnosed with grade 3a stage IV follicular lymphoma.  The father of three, along with his wife Brooke, immediately sought out cancer survivors and cancer thrivers, relationships that led them to Inheritance of Hope. 

 

“We weren’t sure,” Brooke remembered, “but we printed out the application for an IoH Legacy Retreat® anyway, and did it.  I’m so grateful we did.”

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What Can be Done with ALS

In these days of uncertainty and limited social interaction, you might find yourself frustrated by the way your life has changed over the past few weeks (or even days).  Those of us with ALS or other debilitating diseases get it. But if we can adapt, you can too! 

 

The Douglas family making lifelong memories on their Inheritance of Hope Legacy Retreat®
The Douglas family made lifelong memories on their Inheritance of Hope Legacy Retreat® in May 2017
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How to thrive while social distancing--from those who know!

While the rest of the world learns to social distance, it’s business as usual for many of our Inheritance of Hope families.  There’s nothing quite like a terminal diagnosis or deadly virus to quickly scrap plans and teach necessary health saving measures.  For our IoH families, uncertainty is the only certainty, and they understand the disappointment, anxiety, and adaptations that have become routine over these last few weeks.  Because we are all in this together, these unwilling experts offer their tips for coping with fear, near-constant change, and the need to quarantine. 

 

IoH Vision

 

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18 ways to start building your legacy today

On March 18th, Inheritance of Hope (IoH) recognizes the birthday of our Co-Founder Kristen Grady Milligan.  Kristen may have been the best legacy-builder ever--while living with cancer, she prepared cedar chests full of notes, gifts, and videos for each of her three children.  Although young when their mom passed away, Kristen’s son and two daughters continue to feel her presence through the tangible ways she left a part of herself with them.  

 

Kristen Grady Milligan, March 18, 1973 - October 26, 2012
Kristen Grady Milligan, March 18, 1973 - October 26, 2012
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9 Easy Ways to Support an Ill Loved One During the Holidays

While the rest of the world ho-ho-hos their way through the holiday season, those with chronic illnesses might be quietly struggling to keep everything together. Add to that the stress of decorating, attending parties and shopping for gifts and you’ve got a recipe for a holiday-themed disaster.

 

Dinner

 

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Growing Up With a Sick Mom Pt. 2

Ashlea Milligan’s parents Kristen and Deric founded Inheritance of Hope together after Kristen was diagnosed with terminal liver cancer.  Ashlea has perspective that resonates with the broader IoH family, and through her writing, hopes to shed light on issues surrounding terminal illness and those who are left behind in its wake.  She wrote her first installment in this series earlier, and continues to share her thoughts.  

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Growing Up with a Sick Mom Pt.1

Coming to college and discussing childhood with my friends has been a fascinating exploration. My roommates and I come from different backgrounds. While we all grew up under similar circumstances, all American, UNC Chapel Hill-bound children, there are variances that I find striking. Listening to them recount their childhoods is always slightly surprising, and brings out the nuances of my childhood that were contrary to those of my friends. I have begun to recognize how different growing up with a sick parent actually makes your life - the before, after, and during. 

 

Ashlea and her mom, Kristen
Ashlea and her mom, Kristen
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Faces of Holley Day: Ann Camden on how to find your voice like Holley Kitchen

I didn’t know Holley Kitchen but I visualize her face when I hear her name. She has cute blonde hair and expressive eyes. When I first searched online for metastatic breast cancer in 2016, her powerful video was one of the first advocacy pieces that I saw. I cried at the computer when I watched and then I called my husband to sit beside me so we could watch it together. I handed him a Kleenex. Like Holley, I was a young mother that will be fighting cancer until my journey on earth is over.  

 

Holley Kitchen used her voice for good
Holley Kitchen used her voice for good
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3 Simple Ways to Make People Feel Loved

There’s something irreplaceable about intentionality, no matter how small the gesture. I, for one, would prefer a thoughtful, handwritten note over a lavish gift of my own choosing. However, it can be very difficult to find the time and energy to go out of your way emotionally. But, because I believe in the value of intentionality, I’ve found a few fun things to do that make it feel like less of an endeavor and more of a creative activity. The list is quite standard, but I have added a personal twist to make it a little more fun. As a huge bonus, the recipient of your gift will recognize the extra effort put into their gift, and feel all the more loved as a result! 

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Lighting a Candle for Hope

“Scents of Hope,” Marti Ogren’s candle business, is aptly named.  The preschool teacher, who also spent 35 years in a first grade classroom, has found her second calling, and her purpose is bigger than filling your home with pleasant fragrances.  Lest you get the wrong idea, Marti is passionate about the process of developing, testing, and making her soy-based candles. She embraces every step, from brainstorming new products to pouring the warm clear liquid and watching it cool to a creamy solid.  But, she is even more passionate about inspiring hope.

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