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What Can be Done with ALS

In these days of uncertainty and limited social interaction, you might find yourself frustrated by the way your life has changed over the past few weeks (or even days).  Those of us with ALS or other debilitating diseases get it. But if we can adapt, you can too! 

 

The Douglas family making lifelong memories on their Inheritance of Hope Legacy Retreat®
The Douglas family made lifelong memories on their Inheritance of Hope Legacy Retreat® in May 2017
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How to thrive while social distancing--from those who know!

While the rest of the world learns to social distance, it’s business as usual for many of our Inheritance of Hope families.  There’s nothing quite like a terminal diagnosis or deadly virus to quickly scrap plans and teach necessary health saving measures.  For our IoH families, uncertainty is the only certainty, and they understand the disappointment, anxiety, and adaptations that have become routine over these last few weeks.  Because we are all in this together, these unwilling experts offer their tips for coping with fear, near-constant change, and the need to quarantine. 

 

IoH Vision

 

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18 ways to start building your legacy today

On March 18th, Inheritance of Hope (IoH) recognizes the birthday of our Co-Founder Kristen Grady Milligan.  Kristen may have been the best legacy-builder ever--while living with cancer, she prepared cedar chests full of notes, gifts, and videos for each of her three children.  Although young when their mom passed away, Kristen’s son and two daughters continue to feel her presence through the tangible ways she left a part of herself with them.  

 

Kristen Grady Milligan, March 18, 1973 - October 26, 2012
Kristen Grady Milligan, March 18, 1973 - October 26, 2012
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Meet the newest Inheritance of Hope volunteers: 16 join our ranks at the Orlando Legacy RetreatⓇ sponsored by Kendra Scott!

Out of our record-breaking 16 new volunteers, five are former family members served--and you know what that meant--lots of hugs and smiles as we welcomed them back!  Get to know a few of them here!

 

Our newest Inheritance of Hope volunteers along with our “first-timers” from Kendra Scott and Dillard’s
Our newest Inheritance of Hope volunteers along with our “first-timers” from Kendra Scott and Dillard’s

 

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Shine Bright at the Orlando Legacy Retreat® presented by Kendra Scott

I love this Legacy Retreat® so much! There are several reasons why it is so special.

 

1) All of the families on this retreat have the same diagnosis. They have metastatic breast cancer. Powerful community is always formed among the families at Legacy Retreats®, and this particular retreat seems to bring about instant connection as these families don't even have to explain about different illnesses to one another. In fact, many of them have been in private Facebook groups and chat rooms together and now they are finally meeting face to face.

Orlando Legacy Retreat presented by Kendra Scott
Orlando Legacy Retreat® presented by Kendra Scott, Feb. 2020

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Reason for the Hope

1 Peter 3:15-16 – "In your hearts regard Christ the Lord as holy, always being prepared to give an answer to anyone who asks you to give the reason for the hope that you have, yet do this with gentleness and respect."

 

Inheritance of Hope volunteers do such a great job telling people what we do. On a retreat people see our shirts and our large group and they often ask, "What is this group all about?"

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IoH Welcomes 11 new volunteers in New York City!

11 new volunteers joined the IoH family to take a bite out of the Big Apple during our recent Inheritance of Hope Legacy RetreatⓇ in NYC.  Meet a few of them here!

 

Front row (l to r): Libby Storm, Anneli Shaw, Baylie McClafferty, Katie Atwater Middle row (l to r): Jensi Shaw, Jennifer Weitz, Claire Weitz, Jane Augur Back row (l to r): Nick Ranieri, Charlie Garrison, Roger Lykins
Front row (l to r): Libby Storm, Anneli Shaw, Baylie McClafferty, Katie Atwater
Middle row (l to r): Jensi Shaw, Jennifer Weitz, Claire Weitz, Jane Augur
Back row (l to r): Nick Ranieri, Charlie Garrison, Roger Lykins
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Everlasting Father

Originally posted in December 2015

A year ago I reflected on the wonder of “Unto us a child is born,” which took on fresh richness as Allison and I experienced new parenthood along with Advent. Now we can hardly believe that we have been parents for a year already! Our baby girl has grown and changed so much, and so have we. As Advent scriptures and songs once again circulate, different parts of them grab my attention. In a recent reading of Isaiah 9, the phrase “Everlasting Father” struck me. I love my little girl to death, but that is tragically literal – some day death will interrupt my fatherly love. An “Everlasting Father” is worthy of reflection.

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9 Easy Ways to Support an Ill Loved One During the Holidays

While the rest of the world ho-ho-hos their way through the holiday season, those with chronic illnesses might be quietly struggling to keep everything together. Add to that the stress of decorating, attending parties and shopping for gifts and you’ve got a recipe for a holiday-themed disaster.

 

Dinner

 

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He is My Strength

This piece was originally published in November 2011 by Inheritance of Hope Co-Founder Kristen Milligan. Kristen passed away from a rare liver cancer in 2012, but her legacy remains through her vision of serving other families like her own.

 

The LORD is my strength and my shield;
my heart trusts in him, and he helps me.
My heart leaps for joy,
and with my song I praise him.

Psalm 28:7

 

In January, I began training for the 2011 Marine Corp Marathon.  I had exactly ten months to prepare myself to finish 26.2 miles in less than seven hours.  I worried from day one.  I had spent the previous months recovering from a brutal surgery where doctors removed cancerous tumors from my chest cavity, the lining of my heart, my lungs, my diaphragm, and my esophagus. 

 

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