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Finding art in unexpected places

This collection of work was inspired by my mom for her perseverance and strong will. She has always been my role model and is the strongest woman I know. In the summer leading up to my junior year of high school, my mom was diagnosed with a stage four brain tumor called a glioblastoma. After my mom’s diagnosis, I became very involved in her treatments and doctors’ visits. I enjoyed accompanying her to appointments and often would ask the doctor and surgeon questions, so I could better understand what my mom was going through. At each appointment we would go over MRI and CT scans. First, to prepare for surgery, in which they would remove as much as they could. Secondly, to continue observing the growth or shrinkage of the tumor, post operation and treatments.

 

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Family Spotlight: Gabe and Erin Matheny’s survivor story

“If I could, I would make people go on an Inheritance of Hope Legacy RetreatⓇ,” says Gabe Matheny, former EMT from Corinth, Texas.  Diagnosed with a glioblastoma multiforme tumor, Gabe attended an Inheritance of Hope Legacy RetreatⓇ to Orlando with his family in May 2018.  “Originally, I was hesitant to go, but IoH was probably the biggest, best experience that has happened to us, and one of the best decisions we’ve ever made.  It was a huge relief for us, and we had so much fun with our kids.” He goes on, “Plus, the resources, the memories we got out of that, and the new friendships we still have...  There would have been absolutely no way for us to do that otherwise. From the first moment we got off the plane, the welcome we were given--the staff and volunteers just did so much. You could see it in their faces.”  Gabe pauses to consult with his wife, Erin, “what is the word I’m looking for?”

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Lighting a Candle for Hope

“Scents of Hope,” Marti Ogren’s candle business, is aptly named.  The preschool teacher, who also spent 35 years in a first grade classroom, has found her second calling, and her purpose is bigger than filling your home with pleasant fragrances.  Lest you get the wrong idea, Marti is passionate about the process of developing, testing, and making her soy-based candles. She embraces every step, from brainstorming new products to pouring the warm clear liquid and watching it cool to a creamy solid.  But, she is even more passionate about inspiring hope.

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Finding our way while helping others: longtime brain cancer survivors and caregivers share their experiences

One thing our IoH families all have in common is the desire to help others on this same road, and to make the path easier where possible.  Many of our families affected by brain cancer have particularly positive outlooks, and want to share that with anyone else facing this diagnosis.

 

Brain cancer Painting
Photo credit: Jordan Gersh (Orlando Legacy RetreatⓇ, Feb. 2017)

 

What you should know:

 

1. “It’s not a death sentence.  Yes, it’s terminal and I know that.  One day it will get me, but as of right now, it’s not.  Stay strong. Don’t let it get to you, be in the moment, and be there for other people.”  --Shannon Fogarty 

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The O’Gorman Family: What it means to keep hope in the face of cancer

Jennifer O’Gorman’s number one piece of advice for families facing what she has faced seems contradictory, “Everyone has lots of advice for you, but you have to do what you know is best and trust your gut.  You have to do what feels right for you.”

 

In May 2013, Jennifer’s husband Pat was diagnosed with a glioblastoma multiforme tumor in the front of his brain.  A mere eight days after surgery, he was determined to use his experience for good. Jennifer explains, “He felt like his mission was to touch one person every day and tell his story to give them hope.”  She pauses, and with a quiet laugh remembers, “He was never shy and would talk with anyone any chance he had.”

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From Black and White to Color. Cheryl and Matt Broyles describe their faith in the midst of brain cancer

If Cheryl Broyles is a little more teary-eyed than most moms at Oregon State University's graduation this spring, she has good reason.  When her son Grant receives his degree, she just might be thinking about how she never even expected to see him start kindergarten.

 

In July 2000, Cheryl was diagnosed with a Glioblastoma Multiforme brain tumor and told she had a year to live, more or less.  At the time, her children Grant and Clint were three and one. Miraculously, Cheryl has seen them graduate from high school and set out on their own career paths, which, not-so-coincidentally, reflect the values she and her husband Matt have pursued.  The family of wildlife biologists had plenty of experience putting their passion into practice during summer vacations when they celebrated each anniversary of Cheryl’s survival with a huge outdoor adventure.

 

Matt, Clint, Cheryl, and Grant on their 2010 Inheritance of Hope Legacy RetreatⓇ
Matt, Clint, Cheryl, and Grant on their 2010 Inheritance of Hope Legacy RetreatⓇ

 

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The Hope of Heaven

I am so excited that Kendra Scott has partnered with Inheritance of Hope to sponsor Legacy Retreats. She sponsors Legacy Retreats to honor her friend Holley's legacy, and the reason that I am involved with Inheritance of Hope is because I am carrying on my friend Kristen's legacy. I can definitely relate to Kendra's heart in this mission, and it is such a pleasure to team up with her to honor our friends together.

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Jenna Maier Cooks Up Cash for Inheritance of Hope Families!

Jenna Maier, 14, wants to “ show that no matter your age, you can make a difference.”  The Willow Creek Middle School eighth grader from Rochester, Minnesota, has done just that.  In November, Jenna cooked up a fundraising campaign for Inheritance of Hope. By February, she had raised $500 selling homemade cookies.  

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Volunteer Spotlight: Katelyn Hodge turns 18 while volunteering!

“I wouldn’t have wanted to be anywhere else for my birthday,” said Katelyn Hodge of turning 18 while serving on the most recent Kendra Scott-sponsored Inheritance of Hope Legacy RetreatⓇ to Orlando.  The feeling was mutual--and we hope to celebrate 19 with her as well!

 

Events Director, Betsy Ogren, surprises Katelyn on her 18th birthday
Events Director, Betsy Ogren, surprises Katelyn on her 18th birthday
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Meet our new Coordinator: Jen Roett

When Jen Roett saw Kendra Scott’s metastatic breast cancer necklace charm set on Instagram, “I was like, ‘done!’” she raves, “And I bought it as soon as it came out.”  One-year-old daughter Kennedy loved it as much as mom, and when she reached in to get a closer look, pulled the necklace right off Jen’s neck.

 

Jen went to the Kendra Scott website to find out how she could get her brand-new jewelry repaired, stumbled upon the relationship between Kendra Scott and Inheritance of Hope, and she says, “I began hysterically sobbing, I was so moved.”  The very next day, Jen signed up to volunteer on the February 2019 Legacy RetreatⓇ to Orlando, which was sponsored by Kendra Scott, for families affected by metastatic breast cancer.   

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